The Internet is wonderful resource for information about misophonia… but it can also be a bit of a minefield.
If you’ve only just learned that this condition has a name, and you’re looking to connect with others, it can be hard to know where to go to get sound advice.
That’s why I’m compiling a list of safe places here where you can speak to other who have misophonia or Sensory Processing Disorder without the fear of being judged, given bad advice or trolled.
Misophonia Forums and Facebook Support Groups
Since you’re already here, I’ll start with our forum. If you want to connect with others then you are always welcome to do so, either in the comment threads or the dedicated forum. This is a safe space to communicate to others with the condition and it’s moderated by me – which means that no posts by trolls, bullies, racists or sexists ever see the light of day.
If you’ve been a reader of Allergic to Sound for any length of time, you’ll know I’m obsessed by the science behind misophonia and the research that’s taking place. If you’re anything like me and you want to get a) geeked up and b) find out how you can help, then make sure you check out this group. This is where the latest research updates, interesting articles and funding drives get posted.
I highly recommend checking this one out. It’s becoming increasingly clear that misophonia comes under the Sensory Processing Disorder umbrella. While many of the SPD groups on Facebook focus on children and parenting, this one is specifically geared towards adults. There’s a really friendly and proactive feel to this group and and if, like many other misophones and folks with SPD, you have sensitivities to visual movements or light or touch you’ll find this really interesting.
‘Meetup’ is an increasingly popular app that connects people with common causes or interests, typically with a view to meeting an offline ‘real world’ events and gatherings. There are now a number of misophonia ‘meetup’ groups in the UK and USA and no doubt this will expand. Obviously please super careful when meeting anyone offline. Make sure you are in a public place and that loved ones know where you are.
Why such a short list?
Unfortunately some misophonia-focused forums and Social Media channels have descended into giant misery fests, with lots of finger pointing and blame and misunderstanding. This can be really damaging – especially the trend towards blaming people as triggers – because it exacerbates anxieties… which then creates a myriad of new problems.
It’s a bit like going into the doctor’s surgery with a broken thumb… and coming out with 300 anxiety disorders
Let’s not sugar coat it, misophonia can be overwhelming and it’s good to have the odd moan and joke with fellow misophones. However, the shortcut to living a happy and fulfilling life with misophonia is to focus on acceptance and constructive coping strategies.
Focussing negative energy on other people making everyday sounds rather than on the disorder creates a viscous cycle of blame and anger. It also alienates people who are already feeling very confused and alone from their families and loved ones. In other words MASSIVE MISERY FEST. The groups I’ve recommend above have been personally vetted by me and shortly after writing this The Misophonia Research Network and Positive Misophonia kindly added us a partner. That’s a digital waxy seal of approval.
I hope you found this helpful. Let me know if you’ve come across any other helpful and constructive misophonia/Sensory Processing Disorder related forums.