The number one question I’m asked is: “How can I get help for my misophonia… or my child’s misophonia?”
What follows here is everything I know about misophonia diagnosis and treatment from resources which I believe to be reputable.
But before we get started please remember…
Misophonia isn’t ‘officially’ recognised as a disorder yet in most countries.
We’re all working hard to change this but It’s important to remember that misophonia still isn’t recognised in the DSM-5 in the USA (the Diagnostic and Statistical Manual of Mental Disorders) or by the WHO (the World Health Organisation). These two entities call the shots on what’s perceived as a medical disorder, both the USA and much of the world.
Why is this important to bear in mind?
Until misophonia is ‘officially’ recognised it will be hard pin down a truly effective, unified and universally accepted approach when it comes to treatment and diagnosis. There is, quite literally, no manual yet. That’s not to say that there aren’t amazing minds working on amazing treatments, it just means that we need to be careful when it comes to managing expectations.
There are lots of so-called cures and madcap treatments out there. Before you part with any of your hard earned money please read this first: misophonia treatment and the need for ethics and regulation.
Looking for tips on getting misophonia support from your school or university? Click here.
Ok, I get it! Just give me the resources
This is a small list at the moment but hopefully this will grow as more occupational therapists, audiologists, neurologists and regulated medical professionals with a good degree of knowledge and expertise in misophonia come forward.
For readers based in the UK
This practice now offers misophonia treatment on the NHS for misophonia. Currently the treatment is mainly focussed around CBT and mindfulness. Important: in order to receive treatment here you will first need to be referred by your GP. Even if your GP hasn’t heard of misophonia explain the situation and ask if you can get a referral here.
Connie Nxumalo, Gleam Globe – Visit website
Connie is an occupational therapist with specialist training and extensive experience working with clients, in particular children and teenagers, who have misophonia. She is also trained in sensory integration as well as other sensory based approaches. Occupational therapy is the treatment we believe to be most effective for patients with misophonia.
Henrietta Roe, Harley Street Hearing – Visit website
Henrietta is a top audiologist based in London. A few years ago I was referred to her for a different ear-related issue but while I was there I spoke to her about misophonia and hyperacusis. She was able to run tests for hyperacusis (a misophonia like aversion to volumes over a certain threshold) and confirm that I had it. She also understood, really understood, misophonia. Her philosophy was about referring patients for non-invasive, talking exercises and therapy.
For readers based in the USA and the rest of the world
At the time of writing all but one of these are US based (with the exception of Dr Vulink in The Netherlands) but this directory will grow over time.
Free coping techniques you can try
Misophonia coping techniques are something we cover quite often in Allergic to Sound. Here are some of the most effective strategies we’ve come across over the years.
Make sure you also check out the comments sections where others share their tips.
Can you help?
Are you a registered audiologist, neurologist or occupational therapist with experience working with misophonia patients? Maybe you have misophonia and have received helpful diagnosis and/or treatment from one of the above. If so please drop me a line here.