This is the #53 edition of our My Misophonia Story series. This week features Hailee (14) from the USA. Each week we’ll feature a new reader story, so if you’d like to share yours, please drop us a line. Hailee, take it away…
Where are you from?
What do you do for a living?
I am a student 🙂
What are you passionate about / what are your hobbies?
I used to really like gymnastics, but I now really like video editing and photography.
How old were you when you first realised you had an issue with certain sounds?
I’m not sure the exact age, around 10 or 11.
When did you first find out it was called misophonia?
I found out summer of 2018.
What are your 3 biggest triggers?
Do you have any other sensory quirks?
When people chew, even when I can’t hear it. It drives me crazy! other than that I can’t think of any at the moment.
Have you told other people about your misophonia and if so what was their reaction?
Yes! My family knows and get annoyed by it, it’s really hard especially at family dinners when I need to leave they think I’m ridiculous. My teachers are super supportive (luckily!) I also recently told my class about the disorder and why these sounds effect me and now they are supportive and trying to stop making them to help me, before they thought i was just annoying.
What’s your funniest/most ridiculous misophonia-related moment?
Okay, so I used to not know how to deal with it, like at all, so in long car rides, my dad would chew so loud and I would let my anger build up until i couldn’t take it. (I have learned how to deal with it way better since then) this one certain time I let it build up for too long, I thought I was going to say “hey, could you please chew quieter” however as you can guess, that definitely did not happen… I started to yell and cry for him to stop and the worst thing was I didn’t even realize I was doing that! I was literally screaming at him while I thought I was being polite… well that was one interesting car ride… sorry dad!
What helps you to cope with your misophonia?
Currently I don’t have many coping strategies, however with chewing I learned that mimicking is useful, so if someone else is chewing gum, I will chew gum and that way it almost blocks out the noise, I also learned to focus on other things besides chewing which is hard but I learned how!
Another thing I do is just stepping out of the room which is very useful to just take a breather and then when I get back in the room kindly tell them what’s going on, having some sort of “plan” for when it gets bad is very useful to have when a student. Fidgets are helpful too!
What are your misophonic superpowers?
Misophonia has really helped me become more patient and aware to things around me. I also feel like with misophonia I am able to help people more when upset or stressed because I understand.
What’s the single most useful piece of misophonia related advice you’ve learnt?
That things pass! When these things happen it’s very helpful to know that it will end and will get better. also, you aren’t alone!
What’s your very best life hack?
Don’t eat moss. It doesn’t taste very good.
Is there anything else you’d like to share with your fellow misophones?
You can get through this! Of course in these moments it’s really hard to remember that it will be okay, also as you can see by this website you aren’t alone!
And finally! The quick fire round…
Favourite place you’ve visited:
Moral of the Story – Ashe
No Safety in Numbers – Dayna Lorentz
Favourite work of art:
I’m not sure!
5 things you couldn’t live without:
My best friends